Wednesday, February 28, 2007

Down the home stretch


Well here we are 88 days after finding out there was something in my head. The past 88 days could have been 88 years as slow as parts of it has gone. I will be returning to work on Monday and I feel great. There are some serious changes inside my head...I am sure that the tumor was having several effects on me other than headaches.


Yesterday Teresa had a doctors appointment and we walked through Erlanger and said hi to everyone. It was great to see everyone...better than great. I am so humbled by all of the support and kindness from everyone...I know I have said this 30 times on this BLOG but it is amazing. I have been working on thank-you cards and have mailed out 80. I have another 120 to go before Saturday.


The weather is nice here right now...It is going to be in the 70's today and I am going to try to get a little work out in...hopefully with Teresa. We have a pile of errands to run.


Sunday, February 25, 2007

No Pain pills


Sorry it has been so long since I have blogged. Two amazing things happened yesterday. First I made it through the entire day without a pain pill. Second I made up a joke:


Q - What is the worst thing you can hear on a first date?


A - Hi, I am Chris Hanson from Dateline NBC.


If you have seen to catch a predator you are laughing. If you haven't you are saying "who is Chris Hanson?"


I plan on returning to work on Monday March 5th. I really think I will be ready and am excited to get to work feeling well. My work has been so good to me and I really don't feel like I have done my best work. I have a strong desire to get back and do well.


As much as I want to get back to work I am going to miss all of the time I have had with Teresa and the boys. The boys are changing so fast...Preston is laughing and Anthony is learning so much.


I have received so many great cards and surprises in the mail. Last week I got a package from the Fantasy Football Guys. I have been in the same league since 1993 and I am the 3rd or 4th newest guy in the league. The package had 14 DVDs...13 football movies and caddy shack and a gift card for Best Buy.


Off to watch the Oscars...


Monday, February 19, 2007

President's Day


Today was President's Day. I know it is a day made for sales at the Mall. However, I do like to reflect and in my restaurant days I used to always ask people who is your favorite president. I have voted for the President 5 times and have only picked one winner:


1988 - Mondale

1992 - Perot

1996- Clinton-winner

2000- Gore

2004- Edwards


I wreak of liberal. However, I really do have views on both sides. Every year I usually recognize Abe Lincoln as my favorite president...I gravitate toward people dealing with things that no one will touch like slavery and the civil war. I have always named JFK as the most overrated president. My learning point for myself this year is that I may have been wrong about JFK. At the civil rights museum I learned a lot of brave things that he did to help with the "movement". I have moved him of the bad list...I am sure his family will be happy. Here's to the USA.

Saturday, February 17, 2007

The staples are out


Well...the staples are out. We were feeling froggy and I asked Teresa to take them out and like a champ she broke out the tool and did it. 18 were easy and 4 stunk. My scar is going to be almost un-noticeable once the swelling goes down and we get all the blood out. So if anyone needs staples removed and don't want to pay a co-pay...Teresa can do it.

Some good some bad


A couple of times over the past three days I have thought I am close to 100%. I have been going through the balance game of to pain pill or not to pain pill. That is where you are guessing a little pain or jacked up on pain pills? So Friday I flew a little too close to the sun as I skipped pain pills until about 6pm...Not so genius...I lost the balance game in the PM. However, I still am recovering well.


I am feeling good strength and energy most of the days. The face and mouth pain are by far worst part. It has been great to have time to recover at home. I will be returning to work either the 5th or 12th of March based on how things are progressing.


We have been getting off the mountain for a couple of hours a day and that has been great to gauge where I am at. Have a great weekend...

Thursday, February 15, 2007

Day 9


So it has been 9 days since my surgery and recovery is going well. The upside is:


  • My fatigue issues are going away fast. I have only had to take 1 nap in the last 3 days.

  • Balance issue are becoming rare.

  • I have lost 16#'s in 9 days.

  • My back and hips are healed.

  • I feel sharp in the head.

  • I have cut back to only 1 pain pill at a time.

The downside is:



  • My mouth still feels like I just got out of the dentist and my lips and lower face tingle. It is hard to distinguish between mashed potatoes and the inside of my cheek.

  • The temporal muscle is sore. No Joke Sore.

  • BM's and I don't mean buttermilk. I have serious and painful cramps when I have a BM...At least I am having them.

The plan over the next few days is to get these staples (22) out, do my face therapy exercises, build a routine, build energy and start on Thank you cards.


I hope everyone is doing well.

Wednesday, February 14, 2007

Being a good dad


I really want to make sure that I am helpful with whatever our kids find passion in. So you can only imagine how excited I was this morning when Anthony came out this morning and asked me to teach him how to do a headspin. He got a couple of rotations but I forget to warn him about the messed up hair and how dizzy he might be. I think he found the shirt in our shed. You can see his Pooh practice mat in the background.

Monday, February 12, 2007

Home on the Range

Me, Me, Me and Bumpy McGee...Teresa and I made it home today from Memphis less than a week after brain surgery. It took us two days and on each day we stopped to eat. Teresa felt bad when she hit the bumps and think she might of missed two. The ride was not nearly as hard as I thought it was going to be. It took a lot out of me but I wasn't in any additional pain. Today it was exciting to see the boys. They were happy!!! After a half an hour and a couple of pain pills I began my naps...6 hours today. I was nice to be in my own bed.

I see the next week as a steady dose of sleep, short walks and warm baths. I really feel ahead of schedule and that I will be back in no time. Teresa has the tool ready to remove staples this weekend.

The official tumor type was a Schwannoma (nerve sheath tumor). It is very rare and is likely to reoccur. However, it will be a year down the road before Dr. Robertson will decide if we need more surgery and if we do it will be a radiation called gamma knife a year or two down the road. However, the gamma knife is a lot easier than the real knife he used this time.

Glad to be home.

Saturday, February 10, 2007

Don't call it a comeback

So here it is only 4 days after brain surgery and I am sitting in my hospital room typing on my BLOG. I can not say enough about the care and support I have had...I really do feel lucky.

You never know what you are going to feel like or what the recovery is going to be... before the surgery I read articles about the headaches, the balance issues and the potential side affects. I have really experienced some pains this week. The headaches and the numbness is really the worst. I really have felt better everyday and think I may get out on Sunday and maybe home by Tuesday or Wednesday.

The worst thing is my mouth as it is not likely to return to normal. Dr. Robertson says that I will learn to live with it...It always feels like I am just getting out of the dentist.

Yesterday we were talking about taking the staples out. Dr Robertson was explaining how easy it is and is giving Teresa the tool to do it herself at home...Is this a good idea? I trust Teresa but maybe Russ and Ann Marie can help with this.

Ken left today and now it is just Teresa and I. I am glad Timora and Ken got to see how lucky I am with a great wife like Teresa and her family.

Have a great weekend.

Thursday, February 8, 2007

Safety and Pain Control

Tuesday's and Wednesday's plan was comfort. Today's plan is safety and pain control. This morning we learned that Tony may have permanent loss of feeling in the right side of his face and all of his teeth, not paralysis, so don't expect a droopy cheek. Regular dental checkups will become the norm. Timora and I brushed it off and said he would need worse news than that to get us down. Timora left today at 4pm.

Most of us have had really bad knock you off your feet headaches where we curl up in bed and sleep it off. Tony has this headache, no feeling in his teeth, and a bunch of people telling him he needs to walk, brush his teeth, and eat. Maybe the headache is from Mountain Dew withdrawal. Maybe not. He's taking the pain in stride. I think he knows that the post-op phase is over and it's time for recovery.

Tony's rock has been Teresa. She's been following doctors orders which isn't always what Tony wants to do. Last night Tony woke up at 11pm and said he wanted to wake up and talk for a while. Lucky for Tony, Teresa was within a few feet cramped up on a mini pull out bed ready to talk. Teresa and I are sharing the massage duties, careful not to pull out the IV in his neck. Tony said if I ever get a brain tumor he will reciprocate the love.

Without food, Tony tends to want to vomit his pain medication which is very painful. The problem is that having no sensation in his teeth is making him gag. Dr. Robertson said Tony will learn to deal with it. He chewed a piece of jello about 20 times not knowing whether or not it was ready to swallow.

For everyone's benefit, Tony will make a joke to let us know he's ok. No smiles, just a joke. He didn't even laugh at the balloon that came with flowers from Cathy. It said, "Hope you're fishin' REEL soon". Flowers also arrived from Sodexho which really brightens up the room. Unfortunately, there will be no sleeping off of this headache. He's going to have to walk, eat, shower, brush his teeth, and drive 6 hours to Chattanooga this weekend.

The official staple count was 20, not 40. Also, for those of you who received pictures, we learned why they didn't shave his head. New research says that having hair in the wound actually helps the healing process by acting as an antibacterial agent.

Much love in Tennessee,
Ken

Tuesday, February 6, 2007

Bravery

People have different ideals for what bravery is. Some people think of firemen, others soldiers, women having babies, etc. I am not speaking of bravery in the sense of feeling no fear, rather bravery as a quality of spirit that enables someone to face danger or pain without showing fear.

As of 7am this morning, I will forever remember Tony as my symbol of bravery. I am so proud of him for the strength he showed for his family and friends as we surrounded him waiting to be wheeled off to surgery.

The entourage of Teresa, Timora, Bill, Ann Marie, Lyn, Jonathan, and myself remained calm up to this point. Then the tears came so Timora and I disappeared for a spell to get ourselves collected. Teresa was allowed into pre-op and shared in prayer with Tony and the surgical team. The wait begins.

Every hour or so we would receive an update:

8:38 surgery begins

Tony is doing fine, we’re approaching the tumor

Removing the tumor, Tony is doing really well

1:30 Closing him up

Then to my surprise the Wizard, uh I mean Dr Robertson arrives in the critical care waiting room. He is pleased. He tells us the 4.5cm tumor is not malignant and originated in his nerves that control his face. Basically he took the tumor out of its sheath. He explained that it was like taking out the inside of an orange while leaving the rind in tact. The reason he explains is that the sheath itself doesn’t grow and removing it would damage the nerves possibly causing double vision, paralysis in the face, etc. His estimate was that the tumor was 10 to 20 years old. Follow up will consist of annual CT’s and any new growth should it occur can be treated with a gamma knife

At about 2pm and in groups of three, we were allowed to visit Tony in the Neuro ICU. He looked like he got in a fight and didn’t do too well. There was about a 10 inch incision from the top of his head to the bottom of his earlobe. He got gypped on the haircut and his hair is woven in and out of the 40 or so staples. In a few months you won’t even notice it. He managed some smiles and was at least able to see everyone before succumbing to the Morphine and falling asleep. No question he’s in a ton (no long o) of pain. We were going to skip the 5:30 visitation and let him rest but the nurse said that Tony kept asking for Teresa and felt it was important for her to return. He didn’t want us to change the channel from People’s Court because it was the same channel as American Idol. He’ll have to watch it alone because it’s not during visiting hours.

So, where did this bravery come from? I’ve seen Tony more nervous going into a wrestling match.

I believe it came from the incredible amounts of love and support that was shown from people around the country, many of whom Tony has never met. I know that Tony is forever changed. In a couple of month’s he’ll be back at work enhancing the lives of the people he works with and forever influencing all those who know him.

With all my love,

Ken

Everything is fine

In my first e-mail out to my family I kept telling them everything is fine. Well it really is...We are 10 minutes from leaving the hotel to go to the hospital. Teresa was up before the 4:30 am wake-up call and so was I. I feel lucky today because I have the best friends and family that anyone could ask for...I am so ready to see you all and laugh about these final days and talk about things like diner last night when the server dropped about 20 rib bones into Teresa's purse. For now I am going to suck it up and go get some brain surgery. Thanks and I love you all.

Monday, February 5, 2007

Next Stop..."The Wizard"


Last night we started driving to Memphis at 11:30 pm. We had a great time at Kendall and Diedre's house. I won $4.00...Ken didn't. Teresa was a work horse on the drive...she drove the first three hours and the I finished it. We got to the hotel at 4:30am. and Timora called us at 5am to say her plane was delayed. I went to pick her up and let Ken and Teresa sleep in a little at 8am. She got in at 9:25am and we took a tour of Memphis on the way back to the hotel...We all went to The Peabody Hotel and watched the Duck, we looked at Jillians, ate some lunch and went to the civil rights museum. I had a good time. My doctors visit was fairly painless and we were out in 2 hours...they put us in a hotel instead of staying in the hospital. I check in at 5:30am with hopefully my posse. By 7:30 am surgery should be on the way.


We are going to Corky's tonight and to the mall so I can get some slippers (house shoes as
Teresa says)...


Ken is going to be the official surgery photographer...so I hope to have some pictures up by Thursday or Friday.


Thanks again to everyone!!!!!!

Sunday, February 4, 2007

We are packing up for Memphis


Here is the Schedule for the next few days:

Sunday February 4th

Noon - Pictures of Anthony and Preston

3pm - Superbowl Party

11pm- Leave for Memphis (Teresa, Ken and I)


Monday February 5th

7:30 am - Pick up Timora from the Memphis Airport

Goto the Hotel, get some breakfast, some site seeing (Graceland from the outside and

hopefully a couple of hours at the civil rights museum)

2:30 pm -Check into Methodist University Hospital for testing (Blood, UA, Chest x-ray and a

MRI).

6:00pm - Get out of the hospital and go to dinner with (Ken, Timora, Teresa, Lyn, Jonathan,

Janice?, Jennifer?, Ann Marie)...Most likely at Corkey's BBQ, Blues City or Neeleys.

Rendezvous is closed on Mondays.

10:00pm-Back to hospital for a good night sleep.


Tuesday February 6th

7:30 am - Lets do this already...No joke...It is time to get the egg out.


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I have set up Timora, Teresa and Ken to Post on my Blog. I am hoping to have them update while I am a little tied up. I may post Monday when we get to the hotel.

Saturday, February 3, 2007

Wow-a-thon


It is amazing what people can do. I can't believe the generosity of people...especially Lyn and everyone I know. Going to the Ton-a-thon I was sure that I was going to be absolutely uncomfortable. From the second we entered I just spent my time enjoying all of the people and the encouragement. Lyn's work was unbelievable...I am beyond thankful. My families expenses are covered...we are worry-free going into this surgery (from a financial standpoint)...Our friends and family raised over $21,000...WOW!!! I can't believe it...we can't believe it. My recovery will consist of writing a lot of thank you cards. I don't know where it all has come from but I personally want to thank everyone and will find a way over the next ten weeks...

Off to the THON


Teresa and I are getting ready to go to the Event Lyn has put together (on her birthday for someone else). It really just hit me that in a couple of hours I will be seeing a lot of our friends that we haven't seen for a while. I am not really prepared for this mentally.


I posted some formula coupons on e-bay today. I can't believe that people will pay cash for coupons.


I will hopefully post a picture or two tonight from the Ton-a-thon.


Off to give Preston a bath...aka Mr. Smiley.



Thursday, February 1, 2007

Done working for a little while

Well today was my last day of work for a couple of months or so. It had the feeling of either I am going on vacation or I am leaving forever. You know the feeling where you are making sure everything is covered and hurring off so you can pack for your cruise. The problem is I am going to pack pajamas. Teresa and I have a full schedule from now until surgery. It should come up really fast...I am really quite calm and ready to get to the hospital and get this done so I can recover and get to the other side. I have so many things I want to do after this surgery.

Teresa and Timora will be keeping my BLOG upto date while I am layed up.